The impact of investing in research co-design
Early involvement changes outcomes for disability research.
Our Impact of investing in research co-design report delves into what we learned when we provided seed funding to 15 projects.
Safety is one of the most pressing issues facing people with disability in Australia. In 2025, we set out to change how research on this topic gets done. We provided seed funding to 15 research projects with a focus on safety.
These projects tested a different way of working – one where people with disability help shape the research from the start.
The Impact of investing in research co-design report draws on the experience of the 15 project teams to share lessons learned on:
- the impact of the seed-funding – from changing the research direction, defining safety and strengthening capacity
- what enabled good-codesign
- what makes co-design harder.
The impact of investing in research co-design - full report
Written by Dr Ellen Skladzien for the National Disability Research Partnership
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Auslan: The impact of investing in research co-design
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Easy Read: Co design is good for research
Download the Easy Read file for The impact of investing in research co-design report
Download the fileSummaries - 2025 Seed Funding projects
13 projects were funded to co-design research proposals. These projects brought together people with disability, researchers, service providers and other partners to co-design future rese
Two projects were funded to co-design knowledge synthesis. These projects used co-design methods to bring together what is already known about an issue and where gaps remain. (Research reports to be published soon)
Safe Homes: Co-designing evidence for inclusive, individualised support for people with intellectual disability in Australia
Dr Tess Bright; Dariane McLean; Amy Conley Wright; Bella White; Dr Zoe Aitken; Stefanie Dimov; Dr Kate Mason; Dr Cate Bailey; Luke Nelson; Brooke Canham; Prof Helen Dickinson; Prof Anne Kavanagh University of Melbourne, Inclusion Australia and University of New South Wales Canberra
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Co-designing research to build regional capacity for culturally safe access to supports and services for people with disability from refugee communities
Dew, A., Robinson, K., Brown, A., Graves, K., Tarquinio, S., Taveesupmai, N., Azimi, Z., Flynn, S., Davis, T., Shearson, A. (2026). Co-designing research to build regional capacity for culturally safe access to supports and services for people with disability from refugee communities. NDRP Final Project Executive Summary. Deakin University, Bendigo Community Health Service, Lifely, Amicus Community Services, Intereach. Published by the National Disability Research Partnership (NDRP).
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Exploring the mobility safety concerns of Australians with deafblindness
Dr Meredith Prain, Dr Sue Silveira, Associate Professor Kathleen Tait, Heather Lawson, Stephen Hallinan, Melinda Carter, Lisa Chen. Able Australia, NextSense Institute, Macquarie University, Deafblind Victoria, Hunter Deafblind Connect, Deafblind West Australians
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Safety Beyond Barriers: Diverse Family Perspectives on Violence and Disability
Dr Liz Hudson, Dr Tess Altman, Madeleine Gay, Kira Duggan, Holly Helprin, Jasmine (Jaz) MacDonald. Children and Young People with Disability Australia (CYDA) and Australian Institute of Family Studies (AIFS)
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Sometimes I’m too safe. Exploring the dignity of risk with adults with intellectual disability.
Rhonda Faragher, Jan Lloyd, Karen Nankervis, Mitchell Toohey, Ruth Faragher The University of Queensland, Down Syndrome Australia, Down Syndrome and Intellectual Disability Queensland
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Developing strengths-based and pleasure-centred understandings of sexual safety for neurodivergent women, trans and gender-diverse people in Victoria.
Sophie Hindes, Brigid Evans, Jacquiline den Houting, Dr Jessica Ison The Australian Research Centre in Sex, Health & Society, Women with Disabilities Victoria, Olga Tennison Autism Research Centre, ReGEN
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Culturally grounded safety for First Nations women with disability (Hidden in Plain Sight)
Barney, J., Devine, A., Huska, M., Blinman, S., & Solomon, L. S. L. (2026). Hidden in plain sight: Culturally responsive continence care for First Nations women with disability. Final Report. Deaf Indigenous Community Consultancy, The University of Melbourne, Continence Nurses Australia. National Disability Research Partnership.
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Psychological Safety of Children with Disability Labelled with ‘Behaviours of Concern’
A/Prof Sarah Knight, Dr Nicole Merrick, Prof Christine Imms, A/Prof Matt Harrisons, A/Prof Lisa McKay-Brown, Chelsea Aquilina, Heather Renton, Juanita Mulholland, Cat Lancaster, Kate Heine, Natasha Staheli, Katie Koullas University of Melbourne, Yellow Ladybugs, Heads Together for Brain Injury
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Cultivating Safety in Agriculture for Persons with Disability
Josie Clarke, Nicole McDonald, Pat Colusso, Nigel Corish Ability Agriculture Foundation and CQUniversity
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Reproductive justice and neurodivergence: A participatory approach to addressing structural inequity
Moulton, J., O’Donovan, A., Pike, A., Arnstein-Kerslake, A., Merner, B., Haining, C., Kirby, C., Toulmin, C., Sutherland, G., La Paglia, H., Hargrave, J., Miles, J., Whelan, K., Noble, K., Witteveen, K., Steele, L., Keogh, L., Prior, M., Viktor, O., Grove, R., Spencer, R., Power, R., Timperley, S., Odoi, S., Dimov, S., & Moodie, T. University of Melbourne; Sexual Health Quarters; Sexual Health Victoria; University of Technology Sydney; University of Queensland.
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Safe-MEALS: Safe food, Enjoyable Meals, Advocacy and Lived Experiences
Professor Bronwyn Hemsley, The University of Technology Sydney; Fiona Given, The University of Technology Sydney, Associate Professor Deborah Debono, The University of Technology Sydney; Janice O’Connor, Partner, Onemda; Dr Anneke Jurgens, Partner, Melba Support Services; Stacey Baldac, Partner, Speech Pathology Australia; Dr Jeff Chan, Partner, consultant.
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Safe in my own skin
Prof Rachael McDonald, Mr. Caleb Rixon, Dr Melinda Smith, Ms. Caroline Bowditch, A/Prof Heather Feldner, A/Prof Elisabeth Lambert, Dr Hana Phillips, Prof John McCormick, Prof Jeni Paay, Prof Kim Vincs, Ms Paraskevi Triantis, Prof Simone Taffe, Ms. Claudia Bridge. MedTechVic Hub, Swinburne University of Technology and Genyus Network
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A Rights-Based Exploration of ‘Safety’ in Home Aged Care for Older CALD Women with Disabilities
Dawson, R.; Dulal, S.; Finlay, E.; Kasidis,V.; Mills, A.; South, S.; Stanley, S.J. Australian Association of Gerontology (AAG) and National Ethnic Disability Alliance
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